PMOS Research Observatory

Support and resources

A few credible starting points on PMOS (still widely known as PCOS) for patients, families and clinicians. This is a small selection, not an exhaustive list.

Informational only, and not medical advice or an endorsement. For diagnosis or treatment, speak with a qualified health professional.

Start here

WHO fact sheet on PMOS

The World Health Organization overview: what the condition is, how common it is, its symptoms, and why so many cases go undiagnosed.

Global
AskPCOS

A free, evidence based app and website designed with patients and PMOS experts, available in 15 or more languages and used in 186 countries. Includes a symptom tracker and a list of questions to bring to appointments.

Global

Clinical guidance

2023 International Evidence Based Guideline (Monash MCHRI)

The current international guideline, developed across 39 organisations and 71 countries, with the underlying recommendations and patient resources.

International
NICE Clinical Knowledge Summary

The UK National Institute for Health and Care Excellence summary for primary care: diagnosis, assessment and management.

UK
ASRM guideline recommendations

The American Society for Reproductive Medicine's summary of the 2023 international recommendations, written for clinicians.

Clinicians

Research priorities

UK Top 10 PMOS research priorities (James Lind Alliance)

The questions patients, carers and clinicians most want answered, from the James Lind Alliance Priority Setting Partnership led by Verity and Cardiff University. A ready made research agenda for researchers and funders.

UK

Patient support organisations

Verity

The UK's PCOS charity. Beyond evidence based information and a large peer support community, Verity runs expert webinars, advocates through a dedicated parliamentary group, and helped set the patient led top 10 research priorities for PCOS.

UK
PCOS Challenge: The National PCOS Association

A leading US patient support and advocacy organisation, with support networks, education and public policy work.

US
Jean Hailes

An Australian women's health organisation with clear, evidence based PMOS information, easy read resources, and tools for clinicians.

Australia